Sunday, March 17, 2013

Light it Up Blue

This week, Cade had a great victory, and a great disappointment.

The school district called and told me that they had observed him in his preschool class, they were amazed at how well he is doing, and they wanted to recommend that Cade attend Kindergarten this fall in a typical classroom. This has been one of our goals since the day I received his diagnosis, so this news put me over the moon. However, I still feel that he will do better with one more year of preschool, so I was planning on having him attend a typical preschool this year, and start Kindergarten next year. I found a preschool program that I fell in love with. The school is private, the class sizes are small and very well structured, and it is an all day program with hours similar to what he is doing now. I felt that the program would be a great bridge from special education to regular Kindergarten for him, so we filled out an application.

I turned in Cade's application (which stated that he does have an ASD diagnosis) and asked the receptionist how long it would take before I knew if he was going to be accepted. She said "For preschool? He's accepted! We accept everyone!" I was excited and went on my way. A few hours later, the teacher called and told me that before he was "officially accepted" he would need to come into the school for some "testing". I took him in the next day, and 10 minutes later, he was done. The teacher called me that afternoon and said that she felt that Cade was not a good fit for the school. She recommended that I wait and apply again next year. I asked her how she was able to come to this conclusion after only seeing him for 10 minutes, and not asking me anything about his history, standardized test scores, or current school performance (which, by the way, is age appropriate in all areas of development). She said "well, he knows his letters and numbers pretty good, but he isn't sounding out words yet, and he seems to be a little immature." Really?! You're telling me that you turn away every immature 4 year old boy who isn't reading for your preschool program? I doubt that... that's not exactly what the receptionist said. I'm sure that the "autism spectrum disorder" written in on his application had nothing to do with it.

Can you imagine if a child in a wheelchair came to the school and the teacher told him that she wasn't willing to make accommodations for his special needs? That would never happen, but happens with autism every day. Just this last month, a bill was on the legislation floor to mandate insurance coverage in Utah for children with autism. The bill didn't pass. Can you imagine if children with Down's Syndrome were denied coverage and a similar bill was introduced to mandate their coverage? It would be a different story entirely. I'm pretty sure that anyone who voted against the bill would be run out of the state!

I'm a very private person, and for the past two years, I have kept most things about my son's diagnosis to myself. Through the experiences that we have had, I'm now realizing that our society has much to learn about autism. These kids need support, and I am going to do my part to raise awareness. Austim Awareness Day is coming up on April 2nd. The Empire State Building is going to be lit up in blue lights to "shine a light on autism" to help raise autism awareness. We will be lighting some blue lights of our own that day. If you have any questions about autism, please contact me. I would be more than happy to share our story of autism with this spectacular kid.

Friday, February 01, 2013

Autism Lingo

The dialogue between me and Cade as we were playing hot wheels:
Me: This road construction is taking a long time! When will it be finished?
Cade: Well, it's going to take 10 days.
Me: 10 days IS a long time.
Cade: Well, the other cars are being patient. They are being flexible thinkers, because they know they will like the new road when it's finished.

This makes me happy!! Those two sentences are lots of hard work paying off!

Tuesday, January 15, 2013

Bye Bye Binkie

I decided to tackle the move to the toddler bed AND ditching the bink over Christmas break. It was pretty traumatic for both of us, but we are doing much better now. Little guy is growing way too fast.

Sunday, December 30, 2012

Wednesday, December 26, 2012

Monday, December 24, 2012

Letter to Santa

I was helping Cade leave some cookies and a note for Santa tonight, and our conversation went like this:

Me: What do you want to say in your note to Santa?
Cade: Tell him I was good all of the days.
Me: Okay. Dear Santa, I tried to be a good boy...
Cade: NO mom, that's not how it goes. Tell him I was good all of the days.
Me: Okay, Dear Santa, I was good...
Cade: And tell him Coleman was bad. Tell him Coleman was naughty.
Me: What?! Coleman wasn't naughty!
Cade: Sometimes he was mom. Tell Santa.

I guess we don't have the Christmas Spirit thing down yet.

Saturday, December 22, 2012

Let it Snow

Russ took Cade to Daniel's Summit today for some good one on one time. Cade is still holding his hand warmers - two hours off of the trail. He is one cold and tired kid, but every time I ask him if he had fun, he just smiles.







Monday, December 10, 2012

Milestones

Here is a picture of our ward Christmas party, last year and this year. Cade finally is excited about Santa. He climbed on his lap, told him he was good, and then said goodbye {he later realized he forgot to tell him what he wanted, so we had to go back!} I was so proud! It might sound trivial, but this is a big deal for a kid with autism. Another milestone met this week, Coleman said "let's go church!" That's a sentence as far as I'm concerned. Time to party!



Friday, December 07, 2012

Trains and Thanks


We were fortunate enough to have the Murphy's join us for Thanksgiving weekend. We fried a turkey again, had some major success at day after Thanksgiving sales, and then on Saturday we went to the Polar Express.

Polar Express was SO fun. Cade quite literally thought that he was going to the North Pole. The look on his face when he looked out the train window and saw Santa was priceless. He was so star struck when Santa walked on the train, that he couldn't even mutter what he wanted for Christmas. Coleman loved the train ride, and I loved all of the novelty... the kids got to have their tickets punched, the wait staff gave us mugs of hot cocoa, and Santa gave everyone a bell. Coleman even threw his ticket out the window and Russ had to chase after it before the train left him. It was just like the movie and absolutely adorable. I hope that we do this again every year.
Coleman actually tried his ice cream cone at dinner before we got on the train.









Cade was proud of himself that he set the table, and he got to eat off of something besides plastic :)



The silverware became Transformers destroying the crackers.

















Both boys not having sitting still enough for a picture. Imagine that.